Bleeding Disorders in Major Media

Thanks for the comments I've gotten thus far - I'm excited to have contact with other people who have, or are interested in, PAI-1 deficiency.

I was reading the March 2010 issue of Health Magazine, and I came across something that might have saved me ten or fifteen years of dangerous bleeding and the trauma of a botched surgery in which I nearly bled to death. It's a very simple Q&A - but not one doctor suggested it until I was over 30. I was so excited to see it! I hope it will save many women the pain and suffering I experienced.

From Health's "Embarrassing Questions:" (This is just a partial bit of the Q&A)

Q. My flow is very heavy...is there anything I can do?

A: If you need to change your pad or tampon more than once every one to two hours, or if your period lasts more than seven days, talk to your gyno about being tested for a bleeding disorder. New research shows that 25 percent of women who have a super-heavy flow may have one and not know it. (!!!)

25 percent! For years doctors brushed me off by saying I "probably had endometriosis" - which it turned out I didn't have. No, I had a bleeding disorder. I hope other young women will be helped and get themselves tested by a good hematologist - i.e. one that knows how to run more than the five standard tests.